Sent by:      Lucy Quek , Singapore (Singapore)
Sent to:      Hemifacial Spasm Association (HFSA) E-mail Group
Date:          August 27, 2006
Subject:      What a wonderful website

Hello everyone,

I have been suffering from HFS since January 2002 and was looking for more information on MVD as the spasm is getting quite bad as I have been off Botox for almost a year. I did not consider surgery in the earlier stage of HFS as the condition was not so bad and I did not fully understand that MVD could be an option for HFS.

After I found an article posted on National Neuroscience Institute website (NNI, Singapore) regarding decompression for Hemifacial Spasm I began to seriously consider MVD as the only solution. I began doing more research and hey I found the HFSA website in early July 2006. I was very excited. I read all the MVD diaries, I read the members' profile and I was even more excited to find some Singaporean members on the list. Prior to that, I thought this is such a rare problem and I was quite alone in my suffering.

During this time, July and August, I consulted two neurosurgeons, and I was very comfortable with the second neurosurgeon I saw and made up my mind go for MVD around second half of October 2006. In July I also got in touch with a few members in Singapore and received information that Frances Ng will have her MVD on July 27, 2006. Last week Frances was well enough and kindly agreed to meet us to answer our queries, as the three of us has decided to go for MVD.

The main reason for my post today is to say "Thanks" and great job for such a wonderful, supportive, informative website and also for putting me in touch with the other Singapore members.

Best wishes,
Permission granted the HFSA to post E-mail message on website.
Lucy Quek, August 28, 2006

 

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