Sent by:      Marco Gandolfo , Sevenoaks (United Kingdom)
Sent to:      Hemifacial Spasm Association (HFSA) E-mail Group
Date:          March 30, 2006
Subject:      I can relate so much to what everyone is posting

Hi everyone,

I can relate so much to what everyone is posting, and I now feel a lot less lonely, after 3 years of isolation, covering my face, wearing sunglasses when it isn't sunny, and going through all the other "tricks" that I'm sure many people reading this will know all about. It has been so exhausting and lonely, and it feels so great to be able to share at last with people who understand, so please forgive me if I ramble a bit!

My HFS has been a demon that came out of nowhere when I was 27. It virtually destroyed my self-confidence, and hit me right at a time when I was trying to do well at work and get promotions. It has made me very depressed at times. I have been offered interviews for jobs, and thought "what's the point in turning up, if I'm gonna look like a freak, and unable to look people in the eye, or worse, if people think I'm winking or laughing at them!" Now I've read that people tackle this by announcing their HFS, I hope to get the courage to do this too.

The other thing that has really gotten me down, is that (I don't mean to sound boastful, I'm just being truthful) people used to say I had really nice green eyes, and now that's a thing of the past!! But I thank God that I found this website, and am finally addressing this problem!! thank you to everyone who posts, your words are such a support and inspiration and relief.

Permission granted the HFSA to post E-mail message on website.
Marco Gandolfo, March 31, 2006

 

Back to top

HFSA HOME

Home | Alternative Treatment Exp.| Ask The Docs | Bell's Palsy Exp. | Botox® Personal Exp. | Botox® Usage | Chat Room | Contact Us | Contribute | E-mail Archives | HFS Histories | Important Dates | Informational Pamphlet | Join Us | Links | Medical Advisory Board | Medical Terms | Members | Membership Summary | MVD Diaries | MVD Surgeries | Organizational Structure | Pictures | Site Map | Site Policy


Copyright © 2001, The Hemifacial Spasm Association (HFSA) Rev. 040901