I had a specific reason for adding my photo to my Member Profile - to show how effective Botox® can be. Unfortunately I don't have any photos of me with my face in spasm, as when this was still my situation I never allowed anyone to take my photo! But I can tell you that my spasms were severe, affecting the entire left side of my face from forehead to neck. The worst area for me was always around the mouth, where I had the terrible upward/sideways pulling, and also the eye, which would open and close rapidly for minutes on end, 24 hours a day. As I have said in other emails, I have been having three-monthly Botox® for around eight years and have never had any significant problems with paralysis or drooping eyelids or the like. I did have some minor problems initially, but once the dosage was worked out, all problems resolved themselves.

So please, those of you who don't want to/can't have MVD (for whatever reason), give Botox® a chance.
Update as of 11/08/07:
Just a quick update for those of you interested in Botox experiences. As many of you would know, I have been having regular 3-monthly Botox injections for my HFS for around 9 years now. Right from the start, I have had a very high level of success with the treatment, with my severe left-hand side spasms controlled about 99%. My dosage was increased over the years, as I started to develop a mild level of tolerance.You might also remember that my husband and I have been trying to start a family for a while now, and as a result I decided to reduce the dosage of my Botox. I was really worried about doing this, as I was terrified that the dreaded spasms would come back. Fortunately, although my dosage was halved from 30 units on the affected side to 15 units, the spasms remained controlled.
Very happily, I am now 14 weeks pregnant. My neurologist and I decided that I would avoid all treatment in the first trimester – there is no scientific evidence whatsoever that the Botox has any impact on fetal development, but we decided to err on the side of caution. So, I have not had any injections since May this year – almost six months now. Amazingly, I remain mostly spasm free. The only time I experience spasms is when I eat (which is frequently these days LOL!) – the chewing seems to set off the tic around my eye, but apart from that, my face remains completely calm. In the interests of not undoing years of excellent treatment, I will be visiting my neurologist next week to begin treatment again.