Botox® Experiences - Vickie Dodds
I joined the HFSA in June 2004. I read the mail quite often but haven't ever wanted to write anything until now.
I was diagnosed with HFS about 4 years ago. It began soon after Sept 11, 2001. I have read that a few of you noticed spasms begin after a stressful event. (THAT WAS A BIG ONE). My Internist recommended Botox® to help relieve the spasms (and anxiety). I was referred to an Ophthalmologist who has treated this quite a bit. I began with one injection on the right upper lid and one on the lower lid. At first it seemed like a dream come true. WOW! What a relief for about 2 months until they ever so gradually started back again. I did notice that my affected eye muscles and smile were a little weaker on that side, but I didn't mind this change for the relief I experienced. Over the years it has gotten worse, now involving the right side of my face as well. The doctor gave me the tiniest effective dose in the right cheek to paralyze that spasm but it REALLY made the right side of my face weak ... crooked smile and all. I elected to have only eye injections for the past 2 years. My facial spasms have become so annoying, disturbing my speech and plain embarrassing. I may try the cheek injection again at my next appointment March 15, 2005. The spasms get so annoying that I actually look forward to the treatment. AND THAT IS COMING FROM A NEEDLE PHOBIC PERSON!!!!!
I am not ready for an intra-cranial surgery at this point, but have been thinking a lot about it and appreciate all the discussion about MVD so I can stay on top of the subject. I find the Botox® helpful for me, truthfully, I can't live without it. Until the day that I am ready for the big decision, my 3 or 4 injections do me fine.
I hope to share more in the future, and thanks for all, I've read.
Permission granted the HFSA to post Botox® Experience on website.
Vickie Dodds, March 20, 2005
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