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We're here for you .....we've walked in your shoes; we understand!
Our goals and objectives in a nutshell.
How the HFSA is structured.
JOIN US - LET THE JOURNEY BEGIN!
Join our E-mail group, and set up your member profile.
Although there are no fees or dues involved in membership in the HFSA, we do incur expenses for such items as Internet server charges, computer software, printing, mailing, etc. To cover these expenses, and to fund our future ability to assist HFS sufferers, we are in need of voluntary contributions from our members.
All contributions, regardless of amount, are appreciated.
Learn more about The Hemifacial Spasm Association's (HFSA) inaugural Membership Meeting held July 18 - 19, 2003, in Pittsburgh, PA (USA) and how you can get your own Meeting Video. The next best thing to being there...
Synopsis of pamphlet used to introduce the HFSA to physicians and medical facilities.
Books available for loan to members. Only charge is member pays one way postage. Currently, only one book, "Working in a Very Small Place: The Making of a Neurosurgeon", by Mark L. Shelton is available for loan to HFSA members.
Your privacy is a major concern!
All members, please read!
Alphabetical listing of HFSA membership with e-mail address, member profile, if provided, and geographical location.
A brief overview of the HFS highlights of members who volunteered
their information.
New members (add information here)
Member Updates (edit here)
Details of members' personal Botox® experiences.
A brief overview of the HFS highlights, including Botox® usage,
of members who volunteered
their information.
Details of members' personal HFS experiences and history,
including their individual HFS
research.
An account of members' personal experiences before and after MVD surgery.
A listing of members that have had MVD surgeries.
Responses, by our Medical Advisory Board (MAB), to a variety of Hemifacial Spasm related questions submitted by our members.
Listing of members of the HFSA Medical Advisory Board, including contact information.
HFS medical information, terminology and common language.
Direct contact to doctors, universities, governmental agencies and other groups/organizations including published material.
Member birthdays, HFSA history, MVD anniversary dates and upcoming member MVD's and tests.
CONTACT US
GROUP E-MAIL
Answers to questions that you haven't even thought of yet!
Suggestions & Links on how to negotiate with HMO's & insurance companies.
TECHNICAL STUFF!
How to set your computer ............
Please join us Thursday evenings at 9:00 PM East Coast (6:00 PST) USA time (Friday - starting at 0200 UTC/GMT) for our weekly group chat.
Although we have a regularly scheduled "Group Chat" every Thursday evening at 9:00 PM EST, the Chat feature is actually available 24 hours a day, 7 days a week. Anytime two or more members wish to chat, they may. If you ever want to chat, just send an e-mail to the group and let members know you're in the Chat Room and ask members to join you there. Or, use e-mail to contact a member/s you wish to chat with and set up a mutually agreeable time to meet in the "Chat Room".