Personal
Information
| Login: |
sbrott |
| Name: |
Sharon Brott
|
| City: |
cincinnati |
| State: |
Ohio |
| Country: |
United States |
| Gender: |
Female |
| Maritial Status: |
Widowed |
| Occupation: |
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| Age at HFS Onset: |
43 |
| Side Affected: |
Right |
| Year of HFS Onset: |
1989 |
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 |
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Treatment History
Symptoms Experienced:
started with twitching in right eye and the distinct feeling there was something in my eye then true to form it gradualy began to twitch more often and ultimately began to spasm, just a little at first and then as it began to move down the side of my face the spasms began to get worse and occur more frequently and violently until the muscle or tendon, i'm not sure what is, under my chin in my neck all the way to the top of the breast bone became involved and that is pretty much where i am now the spasm are almost constant unless i stay pretty much by myself and prevent any and all stress, eye to eye contact,reading or anything that involves having to reajust my focus in anyway.
Medications Tried: medications tried include buspirone, ativan, clonopin, paxil, tegretol, baclafin and neurontin with the exception of neurontin and baclafin they all made me so tired i really could not function, they all made me lightheaded, sick to my stomach, gave me blured vision and really did not help at all. i am currently taking baclafin and neurontin and although they also make me tired they do not have the other side effects and although i like to believe they help in some small way and at least i feel like i am doing something to help myself. i take 10 mgs of baclafin 3 times a day and 400 mgs of neurontin 3 times a day
Alternative Treatments Tried:
I have tried hypnotherapy and various vitamins,no help from either of these treatments.
Tried Botox?:
Yes
Still Using Botox?:
Yes
Botox Comments:
I can count on anywhere from 2 to 4 weeks of being pretty much spasm free after botox but also look like i have had a stroke if i smile or use any facial muscles. when i just can't handle the pain and discomfort of the spasms and i've used up all the energy i have dealing with the spasms i go for botox just to get some kind of breather or rest from the constant pulling and gyrateing of my face so i can regain my strength and deal with it just a little while longer, usually make it 6 to 9 months between shots before i am totally worn out again and need another shot.
MVD?:
No
Number of MVD's:
Date of Last MVD:
,
Doctor's Name:
Facility MVD Performed:
Spasm Free?:
Any MVD Complications?:
Comments:
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