Information Automatically Logged

We use your IP address to help diagnose problems with our server and to administer our Web site. IP addresses are also logged in case of Member Policy violations.

Cookies

Our Site uses cookies to save your password so you don't have to re-enter it each time you visit our site. If cookies are not enabled in your browser you will have to enter your Username & password each time you visit.

Registration Forms

Our site's registration form requires users to give us contact information (like their name, e-mail, and postal address), unique identifiers (usernames & passwords), and demographic information (like their state & zip code).

Contact information from the registration forms is used to get in touch with the customer when necessary.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

Unique identifiers are collected from Web site visitors to verify the user's identity, and for use as account numbers in our record system.

Demographic and profile data is also collected at our site. It is used to tabulate information for the use of all our members.

Surveys

Our online surveys ask visitors for contact information (like e-mail address).

Contact information from the surveys is used for clarification of data and notification of survey results.

Users may opt-out of receiving future mailings; see the choice/opt-out section below.

External Links

This site contains links to other sites. Hemifacial Spasm Association is not responsible for the privacy practices or the content of such Web sites.

Public Forums

This site makes chat rooms, forums, group e-mail services, and message boards available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

Security

This site has security measures in place to protect the loss, misuse, and alteration of the information under our control thru a system of Usernames & Passwords.

Children's Guidelines

We care about children and understand that they have special privacy needs. Therefore, we have adopted the following privacy policy regarding children:

1. We will NOT collect, use, or distribute to third parties personally identifiable information without prior verifiable parental consent.
2. We will NOT give the child access to unmonitored chat rooms, message boards, e-mail accounts, or other services that would give the child the ability to publicly post or otherwise distribute personally identifiable information without prior verifiable parental consent
3. When verifiable parental consent is not obtained, we will only use the online contact information (such as e-mail) to:
   1. Respond directly to the child's request on a one-time basis and not use that information to re-contact the child for other purposes.
   2. Request the name or online contact information of a parent for the purpose of obtaining verifiable parental consent or providing parental notification.
   3. Respond more than once directly to a specific request from a child (such as in the case where a child requests a newsletter subscription) and not used to re-contact the child for other purposes. We will use our best efforts to provide parental notification, which will include the nature and intended use as well as an opportunity for the parent to prevent the use of the information and participation in the activity.
4. We will NOT entice the child to divulge more information than is needed to participate in any activity or service.
5. We will provide the parent a description of the specific types of a personally identifiable information collected from their child upon request. We will allow the parent to refuse further use or future online collection of personally identifiable information and provide a way for a parent to obtain any personally identifiable information collected from their child.
6. We will provide notice to children in age appropriate terms of what personally identifiable information is to be collected.
7. We will NOT provide any links to Web sites that are unsuitable for children.
8. We will encourage children to get their parent's permission before sharing personal information online.

Choice/Opt-Out

1. You can send e-mail to opt-out@hfs-assn.org

Data Quality/Access

This site gives users the following options for changing and modifying information previously provided:

1. You can send e-mail to support@hfs-assn.org